Gerstmann-Sträussler-Scheinker Syndrome and Memory Care: Navigating a Rare Prion Disease
Gerstmann-Sträussler-Scheinker syndrome (GSS) is one of the rarest prion diseases, but its slower 5-to-10-year progression gives families time to plan for memory care and make critical decisions. This guide covers the disease trajectory, when memory care becomes necessary, how to find a facility equipped for both ataxia and dementia, and how to use the time you have to prepare.